As you might know Medfloss.org (formerly medfoss.apfelkraut.org) tries to provide a comprehensive and structured overview of Free/Libre and Open Source Software (FLOSS) projects for the health care domain.
After the initial launch 6 months ago it recently welcomed the 200th project in its repository: the GPL-licensed iDART software – iDART is the abbreviation of “Intelligent Dispensing of Antiretroviral Treatment” and according to its authors addresses many of the challenges faced by public ART dispensing pharmacies in developing countries.
Starting with originally just 120 projects, the medfloss.org database currently holds:
- 206 medical FLOSS projects that can be browsed by application type, enterprise function, standard and additional categories.
- 63 companies and other institutions that are offering professional service for specific FLOSS projects
- 83 references to scientific publications about the utilization of FLOSS in health care
- detailed overview of past and future FLOSS events like the Med-e-Tel 2010 FLOSS-HC track or OSCON Health IT track 2010
… and much more useful information.
My cordial thanks goes to all the contributors that already made and hopefully will continue to make use of the open content concept by revising/extending existing information or adding new content!
For more information about the site and its objectives please refer to the mission statement or these slides. Beside amendments to the actual content I also highly appreciate any general feedback about the site, offered functionality and shortcomings of it.
Are you a practice, clinic or any other health care institution that is using medical open source software in daily routine? And wasn’t it quite hard for you to find the right software, to get it up and running and to finally customize it to your needs without having any experienced users or reference sites at hand?
Even a high number of downloads or a strong ‘activity percentile’ of an open source software project doesn’t tell you anything about the suitability for your purposes and in general about the stability and efficiency that are required for successful clinical practice.
But what if you could see on a per-project basis at which site it is already deployed and even whom you could contact and ask for advice and personal experiences?
Medfloss.org (formerly medfoss.apfelkraut.org) should provide a comprehensive and structured overview of Free/Libre and Open Source Software (FLOSS) projects for the health care domain. Moreover it should offer a platform to foster the exchange of ideas, knowledge and experiences about these projects.
For details about the offered features and services please refer to the Mission Statement.
… and no worries, the movie is not about Open Source, but is released following the same principles than Open Source software. Beside the actual movie also all of its sources (like raw material of 173 GB in size, the script etc.) are freely available.
The title Valkaama is a composition of the Finnish words “valkama” (home) and “kaamos” (polar night). In a bit more than one and a half hours the director Tim Baumann tells the story of two very contrary characters that hook together not quite by accident to finally reach their ultimate destiny in Lapland. The drama is based on the novel “Valkama” written by Hendrik Behnisch.
Once upon a time SourceForge.net used to be the biggest and most popular platform for Free Open Source Software (FOSS) in the world. Just in the field of medical FOSS they hosted more than 900 projects and in total more than 230,000 projects. People from all around the world could search for projects of interest, collaboratively develop them via the platform, seek for support or just download the source code or precompiled binaries.
This is now all gone. According to their recent blog post “Clarifying SourceForge.net’s denial of site access for certain persons in accordance with US law” they disallowed users from ‘rogue states’ to interact with their platform and since last week they are also automatically blocking any IP (visitor) from certain countries including Cuba, Iran, North Korea, Sudan, and Syria.
It appears really strange to me that they still show phrases like “Find and develop Open Source software” or “SourceForge is your location to download and develop free Open Source software.” on their front page. I am not yet sure if they should add the note “… in case you are from a ‘good’ country” or better remove the term “Open”.
At least it is clear that it is not Open Source anymore what they are doing as they are infringing two of the most crucial principles of the Open Source Definition which read like this:
- “5. No Discrimination Against Persons or Groups: The license must not discriminate against any person or group of persons.”
- “6. No Discrimination Against Fields of Endeavor: The license must not restrict anyone from making use of the program in a specific field of endeavor. For example, it may not restrict the program from being used in a business, or from being used for genetic research.”
SourceForge seems not to be familiar with these and is blocking users to comply with the US law … and hell yes, the US is the country whose Secretary of State recently gave a widely honored speech about Internet Freedom.
Happily there are dozens of other real FOSS portals/platforms where you can now move to and host your FOSS project while preserving the original idea of Open Source.
Just another post about this region, but from a bit different perspective … and this one is meant especially for those who are still thinking that Open Source software in the area of health care is a useless toy for computer fetishists and far from being deployed in a productive clinical environment.
Since the beginning of 2003 the Bosten-based Partners in Health (PIH) rolled out a web-based EMR to primarily track HIV patient within Haiti. Meanwhile the system was replaced by the FOSS EMR software OpenMRS and is deployed in 9-10 PIH hospitals spread over Haiti (and by the way more than 20 countries worldwide). Luckily these hospitals are networked via satellite links, so still online after all other systems went down after the earthquake. Only an instance of the system which was used in a now destroyed hospital of the Médicins Sans Frontières directly in Port-au-Prince seems not to be at service anymore.
According to Hamish Fraser, director of informatics and telemedicine for PIH, OpenMRS served before the current crisis more than 14,000 patient records and is now used to “… generate reports for the government and funders and make lab data available to the physicians and medication lists for the pharmacists. We also built a drug supply management tool to track all the medications in our main warehouse and our 10 hospitals.” as Fraser said in an interview with the Healthcare IT News.
Surely FOSS will not play a keyrole in the relief efforts, but still provide considerable means to support medical care for the Haitian people. Also take a look at Fred Trotters article “OpenMRS shines in Haiti” who originally pointed me to this.
PIH welcomes any donations to support their efforts in Haiti.
Meanwhile more than 130 active projects are listed in 21 categories and I still (!) appreciate your help in case you find a broken link, incorrect information or you just have improvement suggestions. Please send me a message or leave a comment. You can submit change requests or new projects via a form which is available here.
[found via netzpolitik.org]
For more information see for example OnTheCommons.org. If you feel like publishing your own work under a similar license, check out the Creative Commons. Within a few easy steps you can create your own Creative Commons license with the conditions you prefer while preserving your copyright.
Update (2010/01/29): Silke Helfrich gives a detailed explanation and argumentation in her post “The commons as a common paradigm for social movements and beyond” that is absolutely worth reading it.
Related post: “The Commons at Flickr.com“.
Wer zur Bundestagswahl noch unentschlossen ist und bei der Wahl auch die Position der Parteien und deren Kandidaten zu Freier Software berücksichtigen möchte, kann hier fündig werden. Auf Initiative der Free Software Foundation Europe (FSFE) wurden die Kandidaten zu Ihrem Standpunkt im Hinblick auf den Einsatz und der Unterstützung freier Software befragt. Des weiteren wurden von der FSFE die einzelnen Parteiprogramme diesbezüglich analysiert und zusammengefasst.
Nur bei Bündnis 90/Die Grünen sind freie Software, offene Standards und freie Lizenzen fester Bestandteil des Parteiprogrammes.
Verwunderlich ist es schon ein bisschen, dass gerade bei den Piraten – einer Partei, die dem digitalen Raum entstammt und sich auch nur exklusiv mit diesem beschäftigt – nicht besonders viel zu freier Software gesagt wird. Eigentlich alle ihre Ziele habe irgendwo etwas mit freier Software zu tun bzw. sind nur mit solcher zu erreichen … deshalb sollte sie eigentlich einen zentralen Punkt im Parteiprogramm einnehmen. Aber die Piraten sind eben auch nur eine “Klientel-/Themenpartei” und nicht mehr …